An infant born with a rare condition and given a week to live got his first chance to meet with Santa.
Jaxon Buell was born with a rare condition where his brain tissue was replaced with fluid and was given a week to live — but at 15 months old, he’s now meeting Santa for the first time.
His parents posted a picture of their baby’s first visit with Santa. Buell was born in August 2014 with a rare condition called Microhydranecephaly, according to an ABC News report.
The family also posted a picture of Buell gazing at the family Christmas tree. They also talked about how much personality they were seeing out of his son.
In a message on Facebook, his father, Brandon Buell, wrote: “In 15 months of being with us, Jaxon is learning to talk, walk, speak, smile, laugh, communicate, can certainly hear and see, and is making strides to even eat on his own, showing promise of one day kicking the only machine that he is actually dependent on, his feeding pump, and all of this with the severe disability that he has, against the odds, and against the doubts that have been there since before he was born.”
Buell isn’t out of the woods yet, and his long term survival is definitely a big question mark. But his parents are committed to giving him the highest quality of life in the meantime, taking things day to day and being grateful for every day they have him.
“Jaxon may ultimately live a shorter life, but he will, as so many other special needs children also will, impact and inspire more lives in their time with us than I or so many others will that do not deal with their struggles,” Brandon Buell added in his Facebook post. “For all of those that truly see, understand and embrace the real purpose of Jaxon’s life and story, we continue to thank you for supporting and being a part of it”